photo from http://phoenixvail.wordpress.com/2011/09/08/the-power-of-letterwriting/

Letters of Support

For all affected by kernicterus and/or supporters of picK, picK’s leadership recently spoke with Steve Shapiro and want to share what we’ve heard from him, AND get your help. Your voices are very powerful (more on that at the end)! What is Steve up to? Steve is once again applying for aPCORI grant (a US government…

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Justin’s Decision: Deep Brain Stimulation

DBS Written by Justin (A Creative Writing English Assignment)              Justin talks to his mom about having deep brain stimulation (DBS) surgery, kind of like a pacemaker that can send electric charges in the brain.  15-year old Justin has kernicterus, which is brain damage caused by severe newborn jaundice.  He has athetoid cerebral palsy, which…

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Let’s Make Kernicterus a Never Event

September 18, 2013 by Kasey Haas, Guest Blogger In 2001, the National Quality Forum labeled kernicterus (KI)– a disability caused by untreated newborn jaundice and characterized by motor and hearing impairments – a “Never Event”. Alongside events such as leaving sponges and tools inside surgery patients, KI was classified as an event that is so easy to avert, that…

PICK at PAS in DC 2013

PICK @ PAS 2013

Posted on May 3, 2013 by Miriam As I post pictures tonight, I think of how deceiving pictures can be. They are the split seconds. I tried to convey some of the reality of our day. In truth, it brought the challenges of formula pumps leaking all over the restaurant floor, a footrest falling from a wheelchair,…

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Preventable Tornado

Jaundice. It’s a word most parents are familiar with, but to my group…it sends chills down our spine. We don’t joke about cute yellow babies, or pumpkins that are orange. For us, jaundice was the strange weather that heralded a MASSIVE TORNADO in an innocent child’s newborn body, just days after coming home from the…