Those living with the K word have no easy road. Countless hurdles lay ahead and behind, and they are forever striving to help one another out and make the journey a little bit easier on those that go behind.
There are many ways for families affected by kernicterus to connect to our group. The best and most accessible of these is on facebook. Our private support group there is called:
Are you newly diagnosed or suspecting kernicterus?
This is the post for you: “Newly Diagnosed”
If you aren’t on facebook, you can post questions and read older posts on our yahoo group:
Other Resources and Links:
Teen FB Hangout
3 thoughts on “Family”
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I have a 4 year old son with kernicterus and am so happy to have heard of your group. If you could let me know the best way to be able to communicate and be part of this community I would be very grateful. Would love to connect with families like ours!
We’d love to have you join us over in our family group. So many great resources and listening ears for this difficult road!
You can find is at facebook.com/groups/kernicterus