Every year, we hear about newborn babies that have suffered from mismanaged jaundice and are reeling from the effects of severe hyperbilirubinemia. The stories of these families remain the same – they were ill advised about neonatal jaundice, medical professionals did not take their child’s jaundice seriously and their children are suffering the effects. Mismanaged jaundice can lead to serious hearing and speech related issues and cerebral palsy.
The Pic-K (Parents of Infants and Children with Kernicterus) nonprofit organization is dedicated to educating the general public about the effects of severe hyperbilirubinemia and preventing kernicterus. The non-profit organization is also dedicated to supporting families through the devastating consequences of severe hyperbilirubinemia.
Together we hope to change this for the better through empowering families with knowledge, support and continued research into understanding the myriad complexities of hyperbilirubinemia. Our blog is dedicated to educating the general public throughout the United States and the greater global arena about the serious effects of severe jaundice (hyperbilirubinemia), and how preventable it is.