Letters of Support

For all affected by kernicterus and/or supporters of picK, picK’s leadership recently spoke with Steve Shapiro and want to share what we’ve heard from him, AND get your help. Your voices are very powerful (more on that at the end)! What is Steve up to? Steve is once again applying for aPCORI grant (a US government…

In the Shadows

They are in the shadows. Babes are at risk.  (Jaundice can become toxic when not managed properly.)  Children live with no viable treatment options.  Research funds are needed.  Adults live in immense difficulty.  Families struggle to hold together fractured pieces of their lives. …all because of jaundice. There are those shaped by “the K word”…

Let’s Make Kernicterus a Never Event

September 18, 2013 by Kasey Haas, Guest Blogger In 2001, the National Quality Forum labeled kernicterus (KI)– a disability caused by untreated newborn jaundice and characterized by motor and hearing impairments – a “Never Event”. Alongside events such as leaving sponges and tools inside surgery patients, KI was classified as an event that is so easy to avert, that…

PICK @ PAS 2013

Posted on May 3, 2013 by Miriam As I post pictures tonight, I think of how deceiving pictures can be. They are the split seconds. I tried to convey some of the reality of our day. In truth, it brought the challenges of formula pumps leaking all over the restaurant floor, a footrest falling from a wheelchair,…