They are in the shadows. Babes are at risk. (Jaundice can become toxic when not managed properly.) Children live with no viable treatment options. Research funds are needed. Adults live in immense difficulty. Families struggle to hold together fractured pieces of their lives. …all because of jaundice. There are those shaped by “the K word”…
DBS Written by Justin (A Creative Writing English Assignment) Justin talks to his mom about having deep brain stimulation (DBS) surgery, kind of like a pacemaker that can send electric charges in the brain. 15-year old Justin has kernicterus, which is brain damage caused by severe newborn jaundice. He has athetoid cerebral palsy, which…
Jaundice. It’s a word most parents are familiar with, but to my group…it sends chills down our spine. We don’t joke about cute yellow babies, or pumpkins that are orange. For us, jaundice was the strange weather that heralded a MASSIVE TORNADO in an innocent child’s newborn body, just days after coming home from the…